We are the proud parents of daughters
with Rett syndrome.
Strong, powerful, beautiful,
remarkable girls and women that we are
lucky to call our own.
Despite the devastating effects of
Rett, their strength and their
resilience inspires and empowers us.
Every day, we watch them fight agonizing
symptoms. And yet we still see a spark
in their eyes, a glimpse of hopes and
dreams that persevere with them, a spark
that refuses to be extinguished. But that
spark that we see in their eyes is just
that, a spark, a glimpse of who our
daughters really are, what they are
capable of, who they might become. We
share photos and videos that highlight
the best moments of our days, but those
moments are fleeting mere seconds when
we're able to catch a glimpse of the true
selves, beyond the prison of Rett
syndrome. It's also those moments when
we're painfully aware of all that Rett has
stolen from us.
We're grateful for the glimpses but they
are only glimpses of what truly lies
within our daughters minds and hearts.
Despite all this, we remain optimistic
about the future.
We're holding fast to that spark in our
daughter's eyes and imagining what it
will become once we have a cure. We dream
about their personalities, their joy, their
love and their laughter, freed from the
cruelty of Rett. We are optimistic in
large part due to the remarkable progress
we've seen in research. It gives us a
very real likelihood that the glimpses
we now see of our daughters will become
so much more. To research the glimpses
can shift two hours and days and months
and years where our daughters can be
there real and true selves. We need more
families to step up and fundraise for
the research and more of their relatives
and friends to make this : their leading
cause. We need more people to understand
that this is a cause for which their
contributions can lead to a huge impact
on lives. Time is of the essence. We can
wait no longer for the glimpses we see
of our daughters to turn into much more
than a flicker. This is within reach
scientifically. With your help we can
make the Cure a reality.
Our children are waiting.
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